Emily Lenee

Lilypie First Birthday tickers

27 June 2009

Happy 3rd Birthday Taylor Lorraine






This year Taylor had quite a celebration.  It started out with the Toson tradition of a decorated door leading down a present trail to the special breakfast table and then took us to the Nick Hotel where she got to have a special birthday party with Sponge Bob, sleep in a Dora room with her BFF Ana, have a party with Dora and a special breakfast.  Then, we had a day Cocoa Beach body boarding and last, but not least, a special party play group with all her new little friends here.  It was truly the birthday that never ended!  Thank you everyone for all the amazing gifts!!!!! 



26 June 2009

Art by Ana


Ana is really into computers lately.  Ours has a nifty little camera built right in, which we typically use to video chat with Nani and Gagi, but Ana took it to new levels and created this ALL ON HER OWN.   Truthfully, she was messing with the computer for awhile a few days ago and I finally got a chance to look around and see what she did.  There is a whole line of these "self portraits" but this is BY FAR my favorite!  I have NO IDEA how she did this, but I'm thinking of getting it printed really big on canvas and displaying it.....


22 June 2009

Danskin Orlando Triathlon

For those of you who didn't believe........ PROOF that I did it!!!!

06 June 2009

Taylor Update- Day 2

Tay is dong great, but we're still here for at least another 24 hours.  When we saw Dt.Kotan this AM there was no change, and Taylor had spiked a low grade fever.  So, in his words, "we'll see what she looks like tomorrow and maybe next day...we just see".

Basically they're waiting for (1) signs that the infection is responding to the antibiotic, and (2) they can get enough "drainage" to obtain a sample for culturing.  

The VERY GOOD news is that just about an hour ago the nurse was able to drain the wound a little.  There is still a lot of hardness and swelling (AKA puss trapped), but the drainage is a good sign.  They got a great sample and have sent the culture off to test for what strand of MRSA we're dealing with, and to see which antibiotics will work best!  Also good news is that there have been no new follicular flair ups (I don't even know if that's a word phrase, but it has a ring to it, doesn't it).

Taylor's hanging in there like a champ and is enjoying her round the clock videos, visits by Ana, and sweet get well gifts and treats from family and friends!  THANK YOU EVERYONE!!!!

Get well balloon and bunny from Nani and Gagi...  man they're good!!  We also got to video chat with them, which really helped lift poor bored Tay's spirits!


Big sister has been able to pop in with daddy and try to entertain Taylor for awhile.  And never fear, Ana's having a blast with Daddy- she saw "Up", has been going for lots of bike rides, and having a lot of daddy/Ana pool time!!!!!


Coloring away..... I feel kinda bad, the hospital has a ton of toys to share, but whatever we use we have to keep because we're "CONTAMINATED"....................

05 June 2009

Taylor update

Thank you everyone....... we'll see how tonight and tomorrow AM go. Right now they are again treating her, in ISOLATION (aka I can't leave the room AT ALL), for an MRSA infection that has gone systemic (meaning it's spread throughout her body) with IV antibiotics. The infection is still spreading- so here we sit and wait. Surgery doesn't seem to be in the cards right now, but last time this happened day 3 (which is what tomorrow will be) brought that on, so I'm not too hopeful. The odd thing about it all this time around is that she is getting random spots all over her body (folliculitis) that they say is the original infection site spreading..... no one I know that seems to know anything about med. seems to have heard of that, and I can't find it on the internet at all ( GASP ;) ) !!!!!!!! But really, Taylor is doing AMAZING. Aside from the hour that they dug around all her veins in attempt to locate a blood source (SERIOUSLY PEOPLE! WE CAME TO A CHILDREN'S WARD TO AVOID JUST THAT) she's been in good spirits and is sleeping away peacefully..... don't you LOVE Benadryl????

Taylor is back in her gown...

A hospital gown that is. She has another MRSA infection on her bum and
is being treated with IV antibiotics. Hopefully we caught it early
enough this time. As of now it looks like we did and no incisions
will be needed.

04 June 2009

Disney Part III-Animal Kingdon

A nice sunny day en route to the Jungle..... Ana's FAVORITE PARK!

The Bongos..... the park had certain percussion set ups throughout and each time the girls stayed and played for quite sometime.  Perhaps it's time to get rid of that dining room table and replace it with some drums!

Dinoland USA- CAN YOU BELIEVE IT, it's no wonder this is Ana's favorite park.... a whole section dedicated to her favorite prehistoric friends!!!! They rode the triceratops spin, excavated wooly mammoth bones, play in a bone graveyard and got their faces painted!!!!

And or course they got to meet more characters (still Taylor's FAVORITE PART).  Ana was shy at first, but as you can see, she has warmed up!

It's' hard to even take them seriously!!!  I think Taylor forget periodically about her face bc passer bys would make comments and she'd stare blankly until we reminded her she was a tiger, then she'd laugh so proudly!

The safari attraction.  This one was also a FAVORITE and you get to obtain a fast pass to miss the line (A HUGE MOMMY bonus).  On this attraction you ride through African geography and see real animal life.  There is also a little side story about a poacher, and catching it....... needless to say, Ana is now also obsessed with animal rights!  Our little green girl, makes a mom proud :)
Still a little shy.....


Nani and the girls watching one of the 2 VERY cool shows at Animal Kingdom: NEMO the Musical and The Lion King.  Nemo is INCREDIBLE.  It even wins Tony Awards!




WHAT A DAY!!!  We opened a closed the park again :) :) :)